Among the many benefits to being engaged in social media online is the opportunity to learn about new research and non-profit organizations devoted to research! When I was first diagnosed and treated by Dr Carol Shields at Wills Eye Hospital things happened very fast and were quite a blur!
I just learned of a ocular melanoma charity affiliated with Wills Eye Hospital – the Eye Tumor Research Foundation.
CONTRIBUTIONS MADE TO THE FOUNDATION ARE SPECIFICALLY FOR ONE PURPOSE—TO PROVIDE SUPPORT FOR RESEARCH IN THE INVESTIGATION OF EYE CANCERS AND EYE TUMORS
NOTE: The one statistic from their brochure (below) is “Fortunately, most patients do not develop metastatic disease. Overall, 20% of patients develop melanoma metastasis but it may be more or less depending on other factors.”
Every other resource I have seen quotes 50% as the average number who develop melanoma metastasis (aka METs) but that statistic is usually qualified by saying 50% will develop METs within the first five years. This 20% may refer to over their lifetime, and that would be very good information to know!
Make sure to check the charity you are researching at charitynavigator.org to verify their status as a legitimate non-profit charity and to review their most recent tax returns, which often outline where donations have been spent in the past.