CBD for CTF

CBD for CTF

CBD for Closer to Free

As many people know, for the past few years I have sold various products in order to raise money for charity. I donated gift baskets of products to raffles when I was a sales rep for NYR Organic a few years ago; I donated my profits from the purchase of a certain book about coping with ocular melanoma from customers who used my Amazon Affiliate Link; and as an affiliate of PuraVida I donated the profits from the sale of certain curated selection of jewelry to a number of different fund raisers. A few experiences last year helped me narrow down and focus my fundraising efforts going forward.

I am proud to plan to volunteer at the Closer to Free Ride in person at the Yale Bowl in September. And between now and then I am also working to raise funds for my husband Paul, who is riding 100 Miles to raise $1,000 in my honor, to benefit Smilow Cancer Hospital and Yale Cancer Center.

In January I joined the health and wellness company Vitalibis as a Brand Ambassador. The Vitalibis products are focused on full-spectrum hemp CBD Oil!

Between now and ride day, September 7th, 2019, I am donating any profits I earn from the purchase* of our Soothing Body Cream to Paul’s Closer to Free Ride fund raising!

Vitalibis Soothing Body Cream is a topical rub which provides a cooling / warming sensation to targeted areas, while leaving your skin feeling moisturized. Includes a proprietary blend of oils, including Vitalibis’ premium full spectrum phytocannabinoid rich hemp oil with approximately 400mg of naturally occurring cannabidiol (CBD) and other cannabinoids per tube. Perfect for massage therapists, sports practitioners, athletes and individuals with active lifestyles.

Let the training begin!

 


FTC DISCLOSURE: I was not compensated for this post. This website contains affiliate links and I will be compensated if you make a purchase after clicking on one of the links.

*Eligible purchases must be made from my website https://www.vitalibis.com/sueapito/

Another Year Closer To Free

Another Year Closer To Free

I am really looking forward to participating as a Volunteer with the 9th Annual Closer to Free Ride! This will be our second year participating, me as a ride day volunteer at the Yale Bowl and Paul riding to raise donations. This year he will be riding 100 miles! Here is a photo from the finish line last year after finishing 65 miles.

The still frame at the beginning of this video is actually my medical oncologist, Dr Sznol, who also rode as a fundraiser last year! Watch to enjoy some highlights from last year’s event.

Thank you to everyone in advance for their donations to Closer to Free, and thank you to Paul Apito for riding in my honor!

#CTFRIDE

#GivingTuesday

As you choose where your charitable donations go I’m sharing a post I made earlier this year: http://myeyeblog.info/choose-your-charity-wisely/

Everyone has something that speaks to them – pets, the environment, a disease like cancer that effects them or someone they love. The most important thing is to give. There are some opportunites through Facebook and PayPal where the non-profit organization can earn matching funds, so it might be a good idea to visit the Facebook Page for the charity of your choice before you donate. #GivingTuesday

One Step Closer to Free

As long as I’m alive I’ll participate in the Closer to Free event as a fund raiser or volunteer or maybe even some day as a rider.

I got discharged yesterday, after being in the hospital since Thursday. I just had my second microwave ablation of the ocular melanoma which spread to my liver. It was my six year diagnosis anniversary on Friday.

Thank you to everyone at Closer to Free Ride and Smilow Cancer Hospital and Yale New Haven Hospital for fighting this battle with me! The still frame at the beginning of this video is actually my doctor, Dr Sznol, who also rode in the ride. It is amazing and uplifting to see your actual doctor participating! Thank you to Paul Apito for riding and thanks to the friends and family for their generous donations! #closertofree

Choose Your Charity Wisely

When you make a charitable contribution, do you always check to see where your donations go? Is helping fellow patients with their medical expenses your interest? Or education? Perhaps you are a fan of the Awareness Campaigns with their many colored ribbons! Or research on the cause of a particular cancer?

My primary interest is research toward a cure for Ocular Melanoma. With this narrow focus, there are a few choices. Here’s some food for thought.

“Since 2012, over $1.4 million has been secured specifically for OM research and 9 different research awards” — MRF’s CURE OM initiative

https://www.melanoma.org/research-center/cure-ocular-melanoma/ocular-melanoma-research

So in seven years, Melanoma Research Foundation has received approximately $32 Million* from 2012-2018, and only contributed $1.4 million Ocular Melanoma research.

[*This figure assumes the organization had gifts, grants and contributions of at least $5 Million in 2017 and in 2018 as they have averaged in the five years prior.]

I was surprised to learn this. I suspect a lot of Ocular Melanoma patients and friends are as well, with all the walks and galas and other six-figure fundraising successes… $1.4 Million seems a little “light” to me.


The Ocular Melanoma Foundation is another charity, but one which is completely focused on Ocular Melanoma as their Mission. Their only grant last tax return was for $25,000 and went to an organization which is not solely OM focused, the American Association for Cancer Research.

Their website says “we are able to put most of this money to work funding research through our $50k a year AACR JIA grant program” but their tax return does not seem to support this figure. However, that may be because they perhaps donate on a calendar year basis, but report their taxes using the accrual basis of accounting.

A search of the AACR website shows there is something called the “AACR-Ocular Melanoma Foundation Fellowship” and one can assume that is where their grant money ends up.

OMF also gave 16 patients financial aid for treatment-related travel and 3 people financial assistance for prosthetics.


Tomorrow on the TV Show Dr. Oz, four self-appointed representatives of the group of patients who have a connection to Auburn University and who also have Ocular Melanoma, will be guests.  These women have had extraordinary success getting themselves on the National News, featured in many markets on Local News, and even had a large feature story in People Magazine.  They have a Facebook Page and also ask for donations at their public appearances and through their website called the eyepatchchallenge.org. They are not themselves operating as a non-profit organization, nor have they affiliated with any ocular melanoma organization or charity. They chose instead to direct those donations to a local organization called The Community Foundation of East Alabama. Their fundraising efforts are to raise money for the research efforts in Auburn, Alabama. They published the following specifics “Dr. John Mason, Ocular Oncologist in Birmingham, Alabama has agreed to lead the research efforts. He outlined a three-arm effort which would require a budget of $135,000. The three arms of research would include genetic or germline testing, geospatial testing, and environmental testing.” The group has not made clear whether all the patients who have a connection to Auburn University (the latest count from them is 47 patients) will be able to obtain this bloodwork, or whether this fundraising is just for the benefit of the four ladies we see in the media.  The environmental testing obviously will all be local, focused totally on Auburn, Alabama.


A Cure In Sight™ for Ocular Melanoma along with a generous financial gift from Jack Odell and John Dagres, are donating research funding of $100,000 to the Harbour Ocular Oncology Laboratory at Bascom Palmer Eye Institute and Sylvester Comprehensive Cancer Center specifically “to investigate a strategy for determining the pathogenicity of “variants of unknown significance” in the GNA11 gene in UM development and metastases.”

My tumor genetic testing showed “Somatic variants detected in the tumor: GNA11 Q209L 34%”. So that specific research project is of special interest to me.

NEW Research Funding to Harbour Ocular Oncology Laboratory

UPDATED – DISCLOSURE: in 2018 I had the opportunity to work for ACIS freshening up the website, publishing articles I personally wrote, and other technical website updates both as an independent contractor and as a volunteer; I also sold some products through my affiliate network and donated the proceeds to ACIS.  The total was unfortunately only about $10.


Starting mid-December and into 2019 – all of my fundraising efforts are going to be for Smilow Cancer Hospital through the Closer to Free Fund rather than to charities focused on ocular melanoma.

Fundraising Jewelry Selection

Fundraising Jewelry Selection

My favorite way to fund raise is to as an Affiliate Marketing partner.

I recently announced that I plan to continue raising money for my favorite Ocular Melanoma non-profit charity, A Cure In Sight™ through the sale of a Pura Vida necklace, ring or bracelet displayed below!

I specially curated this selection as the perfect synergy between my efforts to raise awareness about eye cancer and my efforts to raise money for cancer research.

Starting immediately I will donate any commissions* I earn from the purchase using the links below, of this adorable good luck eye charm necklace or “evil eye” ring or the Negu: Never Ever Give Up! bracelet which is one of the Pura Vida Charity Collection bracelets. This means 10% of net profits of this bracelet will be donated to NEGU by Pura Vida, in addition to me contributing my commission to A Cure In Sight!

#NEGU is inspired by 12 yr old Jessie Rees (4/8/99-1/5/12). “Encouraging and supporting kids/families fighting cancer to Never Ever Give Up!

Click the links above or the photos below to go directly to the Pura Vida web page for each item!

The Pura Vida Evil Eye Necklace makes every day your lucky day.
Nix the negative vibes with the PuraVida Evil Eye Ring
10% of net profits of this bracelet will be donated to NEGU by Pura Vida

*I am an affiliate marketing partner with Pura Vida bracelets and jewelry, which means I earn a small commission on the purchase of products made from links directly from my website, myeyeblog.info. This trio of products are the only items which will earn donations for this charity from my commissions.

Pura Vida 30% Off Sale & Free Shipping

It’s Pura Vida Bracelets’ 8th birthday and to celebrate they are offering 30% off site-wide plus Free Shipping starting today, 9/27 through Sunday, 9/30.

And don’t forget, if you purchase using the links on my new fundraising page, I am donating my profits to A Cure In Sight! I’m so proud to fund raise for the only patient founded, patient run, IRS approved non-profit charity focused entirely on interests related to eye cancer – A Cure In Sight™ for Ocular Melanoma.


**This post contains affiliate links and I will be compensated if you make a purchase after clicking on my links.

Thank You! #CTFRide 2018

Thank You! #CTFRide 2018
Thank You Closer to Free for this graphic, borrowed from Facebook

Thank you to our friends and family who helped us with their donations to the Annual Closer to Free fundraising Ride! We had a goal of $500 and are #grateful to have raised $600!

Ride day started with waking at 4am – we were not supposed to wake up that early but we were both very nervous that we’d sleep through the alarm and miss the event! We had attended the rider pre-registration Friday evening before, so the bike was already in the racks at the Yale Bowl.

Saturday morning we joined over 1.900 other riders at the parking lot at 6:15am, just as dawn was breaking. The whole event was very cheerful and uplifting and inspiring as well as very well organized!

Paul rode the 65 Mile route and I Volunteered with the Yale Bowl Cheer group. It is surprising how tired and sore I am from over 5 hours of ringing a cow bell and cheering! LOL! Here are a few of my photos from the day. #CTFRide

This slideshow requires JavaScript.

Pura Vida’s Charity Collection

One of the primary reasons I selected Pura Vida as a company I wanted to affiliate with, is their long-standing commitment to raising money for Charity.

This graphic hit my Facebook wall today and I think it is so pretty, as well as raising money for a very worthy cause. Just click the photo to learn more!

View  the whole Pura Vida Charity Collection HERE

10% Off Entire Order When You Purchase $30+ 


NOTE: I am an affiliate marketing partner with Pura Vida Bracelets. I earn a small commission on the purchase of products made from links directly from my website, myeyeblog.info or links like these which I post on my Facebook Page.

PuraVida Fundraiser for Damon Runyon

PuraVida Fundraiser for Damon Runyon

I’m happy to announce I found the perfect synergy between my efforts to raise awareness about eye cancer and my efforts to raise money for cancer research.

Between now and September 25th, 2018 I will donate any commissions* I earn from the purchase of this adorable good luck eye charm necklace or “evil eye” ring to the 3rd annual Stroll the Square event hosted by William Raveis Real Estate of Glastonbury to benefit the Damon Runyon Cancer Research Foundation.

Click the links above or the photos below to go directly to the Pura Vida web page for each item!

 


*I am an affiliate marketing partner with Pura Vida so I earn a small commission on the purchase of products made from links directly from my website, myeyeblog.info.